Last week I wrote a post about Why do I have to Wear braces? Apparently the questining in school has not stoped. Yesterday Haley told her therapist at school that one of the kids told Haley she walked weird. She told another therapist that she and Mommy decided she didn’t have to wear braces on days Haley doesn’t have Gym and therapy. When she and I talked last night she told me about the girl and I asked what Haley said back to the girl. Haley said well she was mean so I didn’t say anything back because it’s mean not to say anything. Mel and I talked about it with her and told her she could just say that she walks different but otherwise she is the same as everyone else. When we went out of the room and left her to sleep I heard her practicing what she would say when asked.

We were both very upset and Mel posted her frustration to Facebook and we received such a tremoundous response from our friends who truly are just wonderful people. We got a very good suggestion of what to say along with many offers the kick the little girls butt. At any rate this is one of those difficult times as a parent when you just need to provide all the support you can because the world can be crule. This is when we need to teach the positive outlook and how to properly respond. I guess this sort of leads into the second topic I want to cover today and the other blog topic I wrote about last week – Rhizotomy.

I was doing a search today trying to learn more about the surgery and came across a few interesting topics and posts. First I want to reccomend this blog by Ken. You can vist it here at kenmuzteach.blogspot.com. Ken is an adult I’m guessing around 30 something who had the SDR this summer. He has been keeping a blog about the experience and it is quite interesting to read his experience. He is intending to server as a resource for other adults but as a parent it is very enlightening to understand what spacisticity can do to you as you age and why the surgery done at a young age can be and is very bennificial. I also failed to mention the best web site to find out the facts abou the surgery and that is the St. Lous Children’s Hospital web site. Dr. Park is the Dr. who has perfected the surgery and trains most of the doctors who perform the surgery. After watching the videos from the previous blog entry and seeing the video that follows along with what Haley has been going through at school I’m now convinced that the surgery is the best course of action. Check out the video:

So I guess the next step is to figure out when and how to talk about the surgery with Haley. Since I don’t think we will be doing the surgery until the spring I’m sure it’s too early because it can only lead to apprehension but perhaps know it will help her walk more easily and “normaly” will be of encouragement. I guess that’s one we’ll need to ponder carefully.

Similar Posts:

• Just for you
• Rhizotomy – Next steps
• Count Down 4 weeks to D-day
• Daddy Just because your old doesn’t mean you can’t stop!
• Self Pitty

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