http://myspellingsucks.com/count-3-weeks/ An unedited discussion on my dyslexia, ADD, and my child's Cerebral Palsy Mon, 05 Sep 2011 05:39:00 +0000 hourly 1 http://wordpress.org/?v=3.0.4 http://myspellingsucks.com/count-3-weeks/comment-page-1/#comment-676 Anonymous Mon, 05 Sep 2011 05:39:00 +0000 http://myspellingsucks.com/?p=689#comment-676 I wish I could offer advice on finances. I know if money were not an issue I'd go with the best. For me even going with the best I had concerns. I even called Dr. Park's office and threatened not to go forward with the surgery if he didn't personally call me back. I wanted to speak with the man who was going to cut into my daughters backbone and sever some of the nerves in her spinal cord. I don't know anything about Dr. Boydston so I can't say what I think about his work.  Here is what i can tell you about Haley. She used a walker until she was about 3.5 and then became an independent walker. She was amazed at how loose her legs felt after the surgery. Haley was seven years old when she had the surgery. She has recovered from the surgery but it's taken her nearly 15 months to get back all the endurance she had prior to the surgery. That said she finds life much easier now and we would do it again. I do want to mention one other thing. In the last 6 months or so she has developed minor back pain. We think it's due to her growth as it didn't exist right after the surgery but we just don't know for sure if it's related to the surgery or not. That said we would still have done the surgery because things are easier for her now. I wish I could offer advice on finances. I know if money were not an issue I’d go with the best. For me even going with the best I had concerns. I even called Dr. Park’s office and threatened not to go forward with the surgery if he didn’t personally call me back. I wanted to speak with the man who was going to cut into my daughters backbone and sever some of the nerves in her spinal cord. I don’t know anything about Dr. Boydston so I can’t say what I think about his work.  Here is what i can tell you about Haley. She used a walker until she was about 3.5 and then became an independent walker. She was amazed at how loose her legs felt after the surgery. Haley was seven years old when she had the surgery. She has recovered from the surgery but it’s taken her nearly 15 months to get back all the endurance she had prior to the surgery. That said she finds life much easier now and we would do it again. I do want to mention one other thing. In the last 6 months or so she has developed minor back pain. We think it’s due to her growth as it didn’t exist right after the surgery but we just don’t know for sure if it’s related to the surgery or not. That said we would still have done the surgery because things are easier for her now.

]]> http://myspellingsucks.com/count-3-weeks/comment-page-1/#comment-675 Nicole Mon, 05 Sep 2011 01:17:00 +0000 http://myspellingsucks.com/?p=689#comment-675 Hi.  I just came across your blog tonight.  My daughter is 4 and we are thinking about SDR.  We went to St. Louis and met with Dr. Park, who did say she would benefit from the procedure, but our insurance will not cover it out of state.  We live in GA and will be going to meet with Dr. Boydston in Atlanta in a few weeks.  If he feels she is also a canidate we have to decide to do it with the best doctor(Parks) and raise all the money or go with the dr. that our insurance will cover.  I don't know how to make that decision.  How was your daughter before SDR?  Was she walking  unassisted? How old was she?  My daughter uses a walker and is not able to stand by herself.  I would love to get any adviice you may have.  Thanks.  Nicole Hi.  I just came across your blog tonight.  My daughter is 4 and we are thinking about SDR.  We went to St. Louis and met with Dr. Park, who did say she would benefit from the procedure, but our insurance will not cover it out of state.  We live in GA and will be going to meet with Dr. Boydston in Atlanta in a few weeks.  If he feels she is also a canidate we have to decide to do it with the best doctor(Parks) and raise all the money or go with the dr. that our insurance will cover.  I don’t know how to make that decision.  How was your daughter before SDR?  Was she walking  unassisted? How old was she?  My daughter uses a walker and is not able to stand by herself.  I would love to get any adviice you may have.  Thanks.  Nicole

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