Great interview with Dan

Posted under Radio by metzgerbusiness on Tuesday 30 June 2009 at 3:21 pm

We had an excellent interview with Dan Habib yesterday. You can listen to it here:

I’d also like to remind you to visit Dan’s web site Including Samuel

Don’t forget to check out other books, toys and resourcess about inclusion at Inclusion Books and Products


Inclusion Books and Products

Posted under Parenting by metzgerbusiness on Saturday 27 June 2009 at 11:27 am

This posting is to provide my readers opportuinities to learn more or find Inclusion based products.

Books and Movies


Dan Habib – Inclusion Interview Monday 3:30 PM ET

Posted under Parenting by metzgerbusiness on Saturday 27 June 2009 at 11:06 am

On Monday I’ll be interviewing Dan Habib a bout Inclusion.

Before his son Samuel was diagnosed with cerebral palsy, photojournalist Dan Habib rarely thought about the inclusion of people with disabilities. Now he thinks about inclusion every day. Shot and produced over four years, Habib’s award-winning documentary film, Including Samuel, honestly chronicles the Habib family’s efforts to include Samuel in every facet of their lives. The film also features four other families with varied inclusion experiences, plus interviews with dozens of teachers, young people, parents and disability rights experts. Including Samuel has been featured on NPR’s All Things Considered, Good Morning America NOW and in the Washington Post and the Boston Globe. Exceptional Parent magazine said “Including Samuel is a must see film.” The film won the Positive Images in Media award from TASH, an international group committed to the full inclusion of people with disabilities. The film was also screened at the Sprout Film Festival at the Metropolitan Museum of Art (NYC) and named “Best Documentary” at the Somewhat North of Boston Film Festival. The Including Samuel Project is part of the Institute on Disability/UCED, a non-profit 501(c)3 organization at the University of New Hampshire. The project’s mission is to build more inclusive schools and communities through curriculum, training, and outreach. Including Samuel was edited by Rikk Desgres of Pinehurst Pictures and Sound. Dan and I will be discussing inclusion and the impacts his movie has had in places it has been viewed.


HBOT Series Article 1

Posted under Parenting by metzgerbusiness on Monday 22 June 2009 at 11:49 pm

I have been promising a series of articles on HBOT – HyperBaric Oxygeation Therapy. I’ve spent some time gathering this information an working with a Nurse who is a clinical researcher to develop this series of articles. Together we have tried to take the research we have found and summarize it here. I do not intend these article to be anything other than informational and helpful if you are researching the HBOT option. We have not yet done the therapy with my daughter and various Therapists and Doctors whom I trust truly believe it’s a wast of money. That being said many parents believe it provides tremendous help to their children and I wanted to gather the clinical information so I could make an informed decision and help others make their own informed decisions.

Background

In the United States alone, around 500,000 individuals have cerebral palsy. In the most recent survey, it is estimated that that it affects 1.5 to 2 cases per 1,000 live births each year. In spite of the rapid scientific and technological advances related to health care, the incidence of cerebral palsy has remained unchanged for more than four decades. At present, there is no treatment which truly cures this nonprogressive neurological condition.

Some studies over the last 30 years have indicated that HBOT can provide promising results. However, in spite of its potential, it is still considered an alternative treatment. Lets see if we can understand WHY?

Causes and Pathophysiology of Cerebral Palsy
It is necessary to understand the causes of CP to fully understand the significance of utilizing HBOT.

Cerebral palsy is medically defined as a nonprogressive disorder of the developing fetal or infant brain, involving the nerve cells or neurons in the motor system. It is commonly characterized by a delay of motor development, a decrease or increase of muscle tone, joint contractures, growth delay and persistence of primitive reflexes. In some cases, seizures could also occur. Disturbances in sensation, communication, perception, cognition and behavior are noted. Since it is a nonprogressive disorder, the condition neither improves nor worsens.

The exact cause of cerebral palsy is still unknown but it is thought that the condition is brought about by the interplay of multiple factors including prenatal injuries resulting from infections, birth defects caused by certain drugs and congenital malformations. The occurrence of cerebral palsy is also commonly seen after a difficult or prolonged birth as the developing brain is cut off with oxygen for a significant period of time. Prematurity, low birth weights and abnormal birthing positions also been increase the chances of CP.

Just like any other cell, the neurons need an adequate and continuous supply of oxygen to obtain the energy they need to survive. But unlike the other cells in the body, irreversible damage of the neurons sets in if oxygen supply is cut off for 5 minutes or more. Hemorrhage and swelling of the neurons ensue and they become damaged.

As a result of neuronal damage, the brain is not able to communicate and coordinate with the rest of the body, resulting in fine and gross motor difficulties and in some cased impaired communication.

The Use Hyperbaric Oxygenation in Cerebral Palsy

The use of hyperbaric oxygenation therapy or HBOT as a treatment for various disease conditions has actually been around since the 1600s. It is believed that the first hyperbaric chamber was built by Henshaw.

HBOT is an accepted medical treatment for decompression sickness, a condition that occurs from rapid decrease of atmospheric pressure, as seen in scuba diving. It is also used as an effective therapy in air embolism, carbon monoxide poisoning and healing of chronic wounds, which include diabetic wounds and pressure ulcers. Compromised skin grafts, compartment syndrome, necrotizing soft tissue infections, delayed injuries associated to radiation, and burns are some conditions that respond well to HBOT. Clinical testing has supported the effectiveness of HBOT in these states.

In 1989, a study was conducted by Machado focusing on HBOT and its therapeutic effects in cerebral palsy. The test showed significant and promising results. Since then, many research groups have conducted their own investigations. Each study has its own results regarding its efficiency and its role in cerebral palsy treatment. Well discuss some of those tests in a future article.

What is the underlying principle of HBOT in the management of cerebral therapy? What has caused the growing interest in this treatment?

Hyperbaric oxygenation therapy involves intermittent inhalation of 100% oxygen under a controlled pressure exceeding the atmosphere, which is above sea level. At present, 1.5 atmosphere or ATA, which is equivalent to a depth of 16.5 below the sea level, is usually administered in children with cerebral palsy for 60 minutes, five to six days a week. The hyperbaric oxygen is administered in a monochamber, where a single patient is positioned or in a multichamber, where a parent or a medical attendant can be with the child as he goes through a session. Both of these chambers are pressurized with compressed air as the child breathes in 100% oxygen through a specialized mask or an oxygen hood .

Under normal conditions, we breathe air with 21% oxygen at sea level. A 100 mL of blood carries around 19 mL of oxygen combined with hemoglobin in the red blood cells and 0.32 mL is dissolved in plasma. With 100% of oxygen inspired, the amount of oxygen dissolved in plasma increases to 2.09 mL/100 mL of blood, and when you increase the atmospheric pressure to 1.5 ATA with 100% of oxygen, the plasma contains 3.26 mL/100 mL. Simply put, the 100% oxygen is mainly utilized as a drug to force more oxygen into the tissues that typically do not get that much oxygen molecules.

As we discussed earlier when someone has cerebral palsy the blood and oxygen interruption, result in death and decaying of neurons.

HBOT researchers believe that some of the nerve cells and blood vessels making up the impacted area received enough oxygen for survival but not sufficient enough to function normally. HBOT theoretically will allow the body to activate the its’ natural abilities to heal these idling cells by administering increased amounts of oxygen. Through increased availability of oxygen, the damaged blood vessels surrounding the area are healed. The leakage is significantly reduced and swelling is alleviated. Because the integrity of the blood vessels is reestablished, blood supply is improved.


Audible – A dyslexic’s dream

Posted under ADD,Dyslexia by metzgerbusiness on Wednesday 17 June 2009 at 10:46 pm

As I’ve mentioned previously I never really learned to read until I was eleven years old. Since then I have become a veracious reader however no matter how hard I try and no matter what courses I may take to try and improve the speed of my reading. I’m just a slow reader. It takes me about a month to read through a book and I read for at least 30 minutes every day. That would mean that I could only consume 12 books a year and quite frankly that way too few for my information appetite.

Three years ago I switched jobs and my commute grew to an hour each way. This seemed horrible at first even though I was taking on a new job at a much higher salary, I now had to spend 2 hours a day wasted in the car in Atlanta traffic. Anyone who knows Atlanta traffic knows that this meant I would be in the car for up to 3 hours some days. I had to make some form of valuable use of this time. Talking on the phone and emailing on my blackberry were quite frankly too dangerous. That’s when I found Audible.

After the second day in traffic I started searching the internet looking for something that would provide me better use of the time and I came across audio books on Audible. I love to consume information so I signed up. I have listened to over 100 program since signing up. I payed for the $149.95 plan which include 12 books per year and a free subscription to the Wall Street Journal. They have another plan which provides you 24 books per year and cost $229.95 and you can buy books individually.


Two FREE Audiobooks RISK-FREE from Audible


Honor to whom Honor is due

Posted under Parenting by metzgerbusiness on Tuesday 16 June 2009 at 9:58 pm

I’m extremely honored to have been granted father of the year. Its wonderful that I was selected and that my wife nominated me. But the truth is my wife is mom of the century. It’s absolutely amazing what she has done and sacrificed for our children and our family.

Mel always wanted to be a mom. She was a pre-school teacher and incredible at it. The kids loved her and she created amazing lesson plans. Her organizational skills rival that of the most skilled in the world. She was sought after as a teacher because of her talents. I actually tried to convince her to package and sell her lesson plans because they were so incredible.

At any rate becoming a mom was difficult. We lost the first pregnancy and that was very tough. Then one doctor misdiagnosed part of the reason we lost the first baby. We changed doctors. Then H was born and came 8 weeks early. She was in the hospital for 3 weeks, had a brain bleed, then was diagnosed or misdiagnosed with a heart valve problem. Mel took her to every appointment, kept them straight and made sure I was at the important ones.

She knew there was something wrong with H long before anyone else and she convinced the doctors to get us into physical therapy at only 6 months. Thank G-d she did. After another 6 months she and the therapist agreed that H wasn’t making the progress they thought she should so they got the doctors to send H to a neurologist. This was all in the first year. She has been just as if not more incredible for every year of the past six.

Mel has created a playroom environment in our home that rivals that of any school having a school house station, kitchen station, restaurant station, and has the room perfectly organized so that you always know where everything goes.

At any rate I guess what I’m saying is while it’s great to honored as father of the year, it’s really I that should be honoring her.

I love you Mel thanks for everything you do for our Family. Your the Mom of the century.


Father of the Year

Posted under Cerebral Palsy,Dyslexia,Goal Setting,Parenting,Radio by admin on Friday 12 June 2009 at 9:39 pm

Due to this web site and the honor of being named East Cobber Father of the year I was interviewed by Norma Stanley tonight. Norma is an advocate and author and I truly enjoyed our conversation and was honored to be interviewed by her.
06-father1

East Cobber Father of the Year Cover

East Cobber Father of the Year Cover

You can listen to the program by choosing the play button below.


Paul Smith – Type writer Artist

Posted under Cerebral Palsy,Goal Setting by metzgerbusiness on Tuesday 9 June 2009 at 12:03 am

I know I haven’t posted in a while but hopefully this post will make up for it. I’ve done a few movies in the past but this one took a bit more effort then I’m used to. So I’ve spent the last week putting it together.

Paul Smith was born in 1921 and lived until 2007. He had sever CP. He did not receive a formal education as inclusion was not even a word in those days and he fought institutionalization for many years until he had to sub come after loosing both his parents and not having enough external support to allow him to live independently.

According to his the Paul Smith Foundation he was a wonderful chess player and had quite a sense of humor. I’ve compiled this short video as both a tribute and an inspiration. I hope you enjoy.

Paul Smith – Type Writer Artist with Cerebral Palsy from Kevin Metzger on Vimeo.


Blog Talk Radio Program – Guest list

Posted under Parenting by metzgerbusiness on Wednesday 3 June 2009 at 2:26 pm

I’m copying and pasting my long letter to the initial guests who will be on my Blog Talk Radio program Beginning this July. Stay tuned for more info!

Thank you so much for agreeing to come on the show. I’ve been amazed at the folks who are willing to help out and said yes with as little information as I’ve provided so far. I have included a list of people who have agreed to come on the show and a short profile of each person.
Here is additional detail about the show.
The show will be at 8:30 PM ET Tuesdays beginning July. If we have an exception to that time we will pre-record the interview and then do a play back at the 9:00 PM time.
The format of the show will be:
5 minute show and guest intro
5 minutes get to know guest questions
10 minutes on topic/story
5 minutes about your product/organization/etc.
10 minutes on listener questions/open discussion (optional)
5 minute outro

West Conner
West grew up in a neighborhood that, for lack of a better term, had a lot to be desired. He though everyone had bars on their windows and thought it was normal to have your house broken into. Despite his circumstances he managed to become a pharmacist.

In West’s own words “Shortly after I began practicing, I realized that prescription prices were getting out of control. So I had to ask ‘why?’ My patients were complaining more and more about the increasing prices. During this time I began thinking that the people needing these medications are soon going to be in financial trouble. With many seniors on fixed incomes and the prescription prices going up, where is the money going to come from?”

He began his quest to find ways to lower patient prescription costs and along the way, he’s helped many people cut their medication expenses. With more experience and more knowledge, he’s learned that often times expensive prescriptions drugs are not always the only answer to health issues. Diet, nutrition, exercise, and supplementation can all but eliminate the need for most prescription drugs. His true calling is helping people save money at the pharmacy, coaching patients in getting off prescription drugs, and moving patients towards health, happiness, and success.

West and I will be discussing the drugs related to ADD/ADHD. We will discuss the side effects, and possible alternative methods to the drugs such as diet.

Dan Habib
Before his son Samuel was diagnosed with cerebral palsy, photojournalist Dan Habib rarely thought about the inclusion of people with disabilities. Now he thinks about inclusion every day. Shot and produced over four years, Habib’s award-winning documentary film, Including Samuel, honestly chronicles the Habib family’s efforts to include Samuel in every facet of their lives. The film also features four other families with varied inclusion experiences, plus interviews with dozens of teachers, young people, parents and disability rights experts.

Including Samuel has been featured on NPR’s All Things Considered, Good Morning America NOW and in the Washington Post and the Boston Globe. Exceptional Parent magazine said “Including Samuel is a must see film.” The film won the Positive Images in Media award from TASH, an international group committed to the full inclusion of people with disabilities. The film was also screened at the Sprout Film Festival at the Metropolitan Museum of Art (NYC) and named “Best Documentary” at the Somewhat North of Boston Film Festival.

The Including Samuel Project is part of the Institute on Disability/UCED, a non-profit 501(c)3 organization at the University of New Hampshire. The project’s mission is to build more inclusive schools and communities through curriculum, training, and outreach.
Including Samuel was edited by Rikk Desgres of Pinehurst Pictures and Sound.

Dan and I will be discussing inclusion and the impacts his movie has had in places it has been viewed.

Theresa Lode

Theresa aka The Mother Lode is a wife, writer and mom to three great kids….one of whom was diagnosed with ADHD several years ago.

Her goal and passion is to help parents take a fresh look at their kids and consider the tremendous giftings and unique talents that frequently lay on just the other side of a “label”.
If you suspect your child has ADHD or learning differences…hang out with Theresa a bit and talk! She will encourage you and maybe share a new perspective that will be a breath of fresh new life into your home. And….you may even have a laugh along the way.

Theresa has been writing for over ten years on topics relating to parenting and home life and is also available to speak to groups on learning differences.

Theresa and I will discuss the joy’s and challenges of parenting a child with ADHD/ADD, Dyslexic and what we can do as parents to ensure the success of our children. This conversation will be relevant to all parents but focus on the ADHD/ADD and Dyslexic child.

DJ Gregory

D.J. Gregory was born with Cerebral Palsy. In 2007 he commited to walk every hole of the 2007-2008 PGA Tournament. He accomplished his goal and walked 900 miles in a year. During his walk D.J. documented his experience wand interviewed the golfers he followed. The blog can be found on the PGA blog site. D.J. walked every round of all 44 events. There is no Pro on the tour who accomplishes this task
Along the way, D.J. raised money for Cerebral Palsy. He picked up sponsors such as Southwest Airlines, Footjoy, Outback Steakhouse, Ashworth, Cannon, and Ritz-Carleton. The PGA calls D.J.’s journey “The Longest Walk in Golf.” And he ended up walking 3,168 holes.

D.J. has a Masters in Sports management and has recently published a book about his experience on the PGA Tour called “Walking with Friends: An Inspirational Year on the PGA Tour.” The book is an excellent read.

D.J. and I will be discussing his experience, how he came up with the idea, and what steps he took to make his dream a reality. We will talk about his perspective on his disability and how he focuses on his abilities rather than his disabilities.

Traci Flome – Speech Therapist

Mrs. Flome works with children who have a wide variety of challenges, including auditory processing disorders, autism spectrum disorder, cerebral palsy, Down syndrome, language delay, mitochondrial disorder, sensory processing disorders, and speech sound disorders. She also has a vast experience with the adult population ranging from aphasia, cognitive deficits, voice and swallowing disorders.

Traci is a proud graduate of the University of Florida with a major in Communication Sciences and Disorders and a minor in Education. She completed her Masters of Education in Communication Disorders at Georgia State University in Atlanta. Traci established Express Yourself Speech Pathology Services, LLC in 2006 after working at various private clinics, home health agencies, skilled nursing facilities and the public school system. She holds a Certificate of Clinical Competence and is the recipient of the American Speech-Language-Hearing Association’s(ASHA) Award for Continuing Education. She is an active member of ASHA, the Georgia Speech-Language Hearing Association (GSHA), and Dysphagia Interest Group of Georgia (DIGG).

Traci is a big believer in Drs. Stanley Greenspan and Serena Wilder’s Floortime program which is a comprehensive assessment and intervention program that combines an understanding of the child’s individual sensory strengths and needs, the child’s developmental level, and the child’s most important relationships.

Traci strives to establish a close relationship with the families she works with in order to improve the potential and progress for her clients. She is a native Atlantan and is married to another native Atlantan, Jeff. They are the proud parents of their almost two year old son known to all as “Mr. Noah”

On a personal note: Traci is a wonderful family friend and overall incredible person who cares deeply about her family and the work she does. Traci and I will be discussing treatments and how to recognize the need for treatment in children with CP.

Jared Miller

Jared Miller is an incredible story. When he was 7 he saw the video for “We are the World” and seeing the starving children of Ethiopia made a profound impression on him. As a child he would help stray and abandoned children by bringing them into his home with the support of his parents. As Jared got older he became involved in Leonard Peltier programs, the American Indian Movement and Martin Luther king marches as well as other civil right movements.

In 2001, Jared have a personal loss and experienced the pain of drug and alcohol abuse but luckily had a brother who helped him get back on his feet and back on the right track for his life. Jared did some introspection and decided that he was at his best when helping others.

He volunteered and lobbied for non-profits such as ONE Campaign, Save Darfur, Genocide Intervention Fund and many others. He was also a partner in a private equity firm called The incubator Group. He enjoyed developing business as part of this group and in November of 2005 went to Rwanda for to set up a project called Project Rwanda. When in Rwandan he met a group of women who were trying to find an alternate means of survival other than prostitution. This is when Jared decided to start KEZA.

KEZA is a non-profit that believes in an African term called “unbuntu.” Ubuntu means interconnectedness, loyalty, equality, respect. KEZA’s mission is below:

KEZA is the result of 3 years of R&D on the ground in Rwanda. Our name means “beautiful” in their native tongue, Kinyarwanda. We are a “people inspired fashion company”, inspired by the people creating our extraordinary fashion goods. We are developing the lives and businesses of African women; giving them something they can believe in and own. And for the first time, they are in control of their destiny. Through our one-of-a-kind products, we are shining a new kind of spotlight on Africa; one that tells the story of the beauty and excellence of its land, and of its people.

Mission Statement

KEZA is dedicated to developing sustainable fashion businesses from women’s cooperatives in Africa. We will ensure sustainability, integrity, efficiency and quality from all of our partners. We will empower our partners to own their own businesses and work autonomously from KEZA. We will help establish Africa’s position in the luxury fashion industry and bring much needed income and careers to those in need. We will no longer speak of “those Africans” living in poverty. KEZA is where “they” become “we”, and together we will strive to bridge the gap between the rich and the poor.

The Philosophy
At KEZA, we subscribe to the “ubuntu” philosophy in all that we do. We lead by example, and we believe in a world of “we”, not “us and them”. Bishop Desmond Tutu described it best when he said: “Ubuntu is the essence of being a person. It means that we are people through other people. We cannot be fully human alone. We are made for interdependence, we are made for family. When you have ubuntu, you embrace others. You are generous, compassionate. If the world had more ubuntu, we would not have war. We would not have this huge gap between the rich and the poor. You are rich so that you can make up what is lacking for others. You are powerful so that you can help the weak, just as a mother or father helps their children. This is God’s dream.” KEZA aspires to spread this philosophy through our products, our example, and our partners in Africa.

On top of everything Jared has accomplished he has dyslexia.

Jared and I will talk about his life journey. The challenges he has faced as a dyslexic, in his personal life, and as a social entrepreneur.

Susan Tauber

Susan started a non-profit in 1982 called the Adaptive Learning Center.
In her daily work Ms. Tauber met many parents of children with developmental disabilities. These parents represented multi-cultural and socio-economic backgrounds and came from communities all over Georgia. However, they shared one common desire— for their children to have equal access to quality early childhood programs like those available to children without disabilities.

Families of children with disabilities wanted the same social and academic learning opportunities for their children that typically had been available to only non-disabled children. Mrs. Tauber created ALC in response to the concerns and needs of these parents and their children.

The ALC’s mission is to maximizes the potential of young children with disabilities, and create awareness and acceptance between people with and without disabilities. ALC achieves this through:

  • An early intervention program that integrates therapy and education in warm, nurturing, inclusive preschools.
  • Support services that help family members understand and cope with issues related to raising a child with special needs.
  • Education and consultation to help communities build resources that foster acceptance and support of people with differences and empower them to become active, contributing citizens.

Personally we enrolled my daughter in the ALC and had a wonderful experience. Susan is a magnificent person and has been a visionary in the field of education and inclusion. Susan and I will discuss the changes she has seen over the last 25 years in education of special needs and inclusion.

Bill Allen

As a child, Bill Allen experienced great difficulty in learning to read and struggled to be successful in school. He worked hard to earn his BBA from Georgia State University. Facing continued learning difficulties in his adult years, Bill moved through 42 different jobs in 20 years, always moving on when his dyslexic reading and writing limitations produced overwhelming stress as he advanced in a job. In his 40s, Bill learned how to solve his own learning and reading difficulties with the techniques of a popular and successful learning program of the time. He then began to tutor children and developed tools to empower them to learn to read.

During the next 8 years, Bill personally tutored more than 150 children. They and their parents traveled – often great distances – to work intensively with Bill for five days, one child at a time. The program he used were costly and required months of lengthy follow up at home. Therefore, the program’s results were available only to those who could afford it.

Intuitively, Bill knew that an easier and more cost effective way had to be created to help every child who has difficulty learning to read – and he was committed to finding the solution to this dilemma. Bill’s creative, dyslexic mind went to work solving this problem and designing multiple solutions.

Ultimately, “The Learning to Read Program” was created so that every family could stay home and teach their children to read. Bill, it has been said, has unlocked the code and, plainly, he can give you (even if you’re a parent yearning for help for your struggling child) the keys you need to enable your own child!

Bill and I will discuss his personal history, the challenges he has had, how he developed his company and the successes his program has had.

AND I’m currently talking with other potential guests.


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