Dear Friends and Family, As you already know, our daughter Haley had a brain bleed shortly after birth, which led to her diagnosis of Cerebral Palsy. Fortunately, Haley is doing incredibly well and we have aggressively treated her since birth with both therapy and more recently surgery. Unfortunately not all people who have Cerebral Palsy [...]

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What does Selflessness! + Strength! + Devotion! + tenderness! + Support! + Listen! + Discipline! + caring! + service! + Asking! + Feeling! + Crying! + Laughing! + Intensity + Relaxing + Encouraging + Lifting + Wishing + Believing + Hugging + Inspiring + Kissing + Surprising + Learning + Dependability + Children + Parents [...]

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Today was an awesome day. Haley and I went on a date to the park. We went to a park that she does not usually go to. As soon as we arrived there was an ice cream truck so we got some ice cream bars. After eating the bars we went on the swings which is always her first adventure at any park. After the swings she went over to the little kid play structure. She always plays….

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It’s been a while since my last blog and I realize I’ve been blogging less over here since I started the DADvocate Project. It’s not that I don’t have tons to say it’s just that I have so much going on and I can’t seem to get everything I want to get done, done. My [...]

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Well a few days back my Little man started crawling and he didn’t take long to find trouble either. He loves going after cords, and loves to crawl into his sister’s room where he has managed to stand up against a mattress and fall backwards and push up on and fall against a wooden stool [...]

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I was out running tonight and I finished my run right in front of the pool. I decided to take a look because there was a swim team competition there. It was fun to see the parents watching their kids compete. I began to think about Haley sports and competition. I was not brought up [...]

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I was recently asked by a parent if they should do an SDR. We’ve been playing phone tag ever since. I just decided that I would write a post explaining my thoughts on SDR and how I would talk to another parent about it I have to start by saying that the operation was a [...]

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It’s been a little over three weeks since the surgery and I’m not sure when I uploaded the last update. I’m writing this one on my iPhone since my Internet is out tonight. Haley is doing extreemely well and recovering quickly from the sdr. She woke up before I left for work today and was [...]

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I don’t think I posted this after the operation but it was a very moving moment and I wanted to be sure I captured it for any other parent that might be considering an SDR for their child. It was within twenty four hours that my daughter said to us “hey my legs feel loose, [...]

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Dr. Park is Haley’s doctor here in St Louis who performed the surgery. Yesterday she told him that he is the best doctor in the world. I really liked his response to her. “No, just the best doctor for you just right now.” There are two things I loved about this conversation 1) Haley already [...]

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it’s been a long and exciting week here in St. Louis. It’s hard to believe we’ve been here for a full week and yet last Saturday feels like a life time ago. I really miss Abby and Isaac and can’t wait to see them again tomorrow. Haley is doing awesome but we have a long [...]

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I was goging to write yesterday but my wife sidelined me with wanting to post on CaringBridge. I don’t know if you would like to follow what Mel says over there the url is http://www.caringbridge.org/visit/haleymetzger. Righ now I am sitting in a private roome reserved for us during the surger. It’s amazing that we have [...]

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I’m not sure if this title of this post sound optimistic or ominous. It sertanly contains elements of both for all of us involved. I’m not going to take the time in this post to explaine everything about SDR. Most readers know whats going on and if you don’t I’ll include a list of posts [...]

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This past week was really pretty amazing. We took a much needed vacation at the beach. It was good for everyone. We all got our minds off the surgery at least for a little while. Haley got a lot of exercise while we were there swiimming,and climbing stairs both good for her core and leg [...]

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I started writing this blog yesterday and was filled with trepidation. You see our friends that had participated in the stem cell study have found that they are having great success. I even talked to a few other parents who participated in the study who are also having great success. Unfortunatly or furtunatly there are no other ongoing studies [...]

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